As I said, I realized pretty soon after my diagnosis, that I couldn’t expect much support from nowadays western medicine. I was looking for cases where MS-patients made it without the, in my opinion helpless, medicine or doctors.
As role-models I picked among others Sven Böttcher and George Jelinek because to me they were showing the most promising ways out of that disease. Basically a diet, exercises and meditation, but instead of stabilizing I slowly, but steadily, got worse.
My walking distance got fewer and fewer, my fatigue got worse and worse and my balance was hardly existing anymore. Meanwhile I had become vegan (+seafood and fish), changed my diet, stopped drinking alcohol, stopped smoking, started to do yoga, quitted my stressy job and started to study. I basically had turned my life upside down.
It didn’t really help at all, but I boosted my immune-system, lost some unhealthy kilos and started to realize many things. In fact I am still learning and realizing things about me, my body and my disease every day.
I live by my fathers support and the rent my brother is paying for living in my (unfortunatly dead since many years) grandparents apartment.
My balinese family is basically the family of my friend and brother Oki – owner of kokiktattoo. So I am in close contact to his wife, children and parents.
But let´s get to the point now.
I am officially suffering under Multiple Sclerosis since my diagnose early 2012. Tracing back my earliest symptoms like Tremor and Fatigue, I am getting on the year 2000. As it is scientifically not possible to determine which kind of MS it is and I can´t remember having any relapses, my doctor defined it as PPMS (primary-progredient).
After the first shock, I did quite some research on my own, basically I studied my kind of MS, lets call it PPMS from now on. Pretty soon I realized that I cant expect any help from modern-western medicine which was the first step in leading me to where I am right now: Renon / Denpasar / Bali / Indonesia, the island of gods.
So here I am.
Kind of living on the Island Of Gods with primary-progredient MS (PPMS) and by 650 € a month. “Kind of” because I am just on a tourist-visa and after the first 2 month I have to extend it at the immigrassi here in Denpasar every month for another month. There are literally thousands of well-informed Blog-Postings about the different visa you can get, to tell you about these isn´t my concern.
“Bule” is the indonesian word for “white-skinned foreigner” and nowadays its not really meant disrespectful anymore.
“Kind of living” also because I am just here since 15th of march, so not long enough to say I am really living here in my opinion. I call it “living with open-end”.
I have been here for an internship-semester in 2016 the first time and got fascinated by Balis culture and its people. Also I got my own theory for my MS – how I got it, what are the reasons behind it and some ideas how to get hopefully rid of it on the other side of the world. In my theory(!) Bali offers the possibilities for that. I will explain these ideas in a later post.