Waikububak is remote. Even for Indonesian people living in Sumba its quite far off the path. But still there is a foreigner here – living here for some years already. He seems to have made “80% bad experiences” here, but he somehow managed to survive and having started the 20%. That is at least what Tadir, a guy that both of us know told me and that’s basically all I know.
A thing I am pretty sure about is, that every MS is different to the other. Maybe not just “the big three” (PPMS, SPMS, RRMS) are existing, but dozens or even hundreds of forms exist. They seem to be as individual as the patient.
Its one Reason why Scientists can´t help us
Unfortunately I think they will never be able to and this makes me really sad. Sure, the effects of this disease are similar. The myelin around the nerves is sclerotizing and this has similar effects, but the reasons behind it and the healing(!) are completely individual.
Sure, there are many things that can help!
But the key to healing lies within everybody her- or himself. Yoga, Meditation and a careful diet are important and can help, but even though they might help a majority of patients, its not guaranteed it will help you or me.
We are as individual as our disease.
I mentioned it quite some times already. I am pretty sure I already made big steps in changing my thinking and yes, I am proud on that. I try to think longer before answering, I try to reflect my actions and, maybe most important, I try to forgive and accept.
For a stubborn Bule like me, life in Indonesia offers many Options for that
But so far the theory. In real life I unfortunately struggle a lot with all this. Very often it is easier said than done and its freakin hard, because it means to give up everything, almost all I’ve ever been and many things I thought they were important.
I am still a baby and a beginner on my way.
While I am doing quite good process in my head and strength and flexibility in my upper body, a recent strong cold (as I call it) or “flu” (like local people call it) tied me to my bed the last two weeks and forced me to interrupt my “learning to walk again”-program.
Today I picked it up again
Just some minor and shaky steps in the backyard for the beginning. But hey, its a start, right? Slowly I try to teach my legs how to carry my body again.
As I experienced last week on the backseat of my OJEK-driver: I am doing okay and getting better, but I am far from being the old me already.
I followed a quite good and slow yoga-video for Multiple Sclerosis and doing the unused poses for the first time was freakin´hard and I bursted out in sweat and losing my balance.
Can somebody show me a shortcut, please?