Every Multiple Sclerosis is different

A thing I am pretty sure about is, that every MS is different to the other. Maybe not just “the big three” (PPMS, SPMS, RRMS) are existing, but dozens or even hundreds of forms exist. They seem to be as individual as the patient.

Its one Reason why Scientists canĀ“t help us

Unfortunately I think they will never be able to and this makes me really sad. Sure, the effects of this disease are similar. The myelin around the nerves is sclerotizing and this has similar effects, but the reasons behind it and the healing(!) are completely individual.

Sure, there are many things that can help!

But the key to healing lies within everybody her- or himself. Yoga, Meditation and a careful diet are important and can help, but even though they might help a majority of patients, its not guaranteed it will help you or me.

We are as individual as our disease.

I am still a Baby

I mentioned it quite some times already. I am pretty sure I already made big steps in changing my thinking and yes, I am proud on that. I try to think longer before answering, I try to reflect my actions and, maybe most important, I try to forgive and accept.

For a stubborn Bule like me, life in Indonesia offers many Options for that

But so far the theory. In real life I unfortunately struggle a lot with all this. Very often it is easier said than done and its freakin hard, because it means to give up everything, almost all I’ve ever been and many things I thought they were important.

I am still a baby and a beginner on my way.

MS – Teaching my legs

While I am doing quite good process in my head and strength and flexibility in my upper body, a recent strong cold (as I call it) or “flu” (like local people call it) tied me to my bed the last two weeks and forced me to interrupt my “learning to walk again”-program.

Today I picked it up again

Just some minor and shaky steps in the backyard for the beginning. But hey, its a start, right? Slowly I try to teach my legs how to carry my body again.

Again: I am not indestructible

As I experienced last week on the backseat of my OJEK-driver: I am doing okay and getting better, but I am far from being the old me already.

I followed a quite good and slow yoga-video for Multiple Sclerosis and doing the unused poses for the first time was freakinĀ“hard and I bursted out in sweat and losing my balance.

Can somebody show me a shortcut, please?

Me and the squat-toilet

Well, my first times on a squat-toilet here in Sumba were quite challenging. Saying anything else would be a lie, but after some weeks now I seem to have adjusted. Its still kind of new to me, but thinking of a western standard-toilet is starting to feel strange now.

Using a Squat-Toilet is just one of my challenges here, but I am starting to enjoy it!

Something deep inside me even seems to appreciate it. Many scientists say squatting is the most healthy (because its the most natural) way to do ones business. Aside from that it is supported by the daily squats I included in my daily yoga and exercise-schedule and hey! I don’t know about your family, but at least my grandparents always had a small table in their bathroom to place it under their feet and help them to put their body in a more squatty position!