Meeting “the mysterious Man from Austria”

This morning I met “the man from Austria”.

He is living in Sumba since over 20 years now and I would definitely say he is more Indonesian than Austrian now. Needless to say that he is fluent in speaking Bahasa and even his thinking seems much more Indonesian than European in any way.

He has got his own small farm (11 dogs, 30 or 50 ducks, 550 pigeons and a lot of pigs) here and since “Deutsche Welle” changed their broadcasting-system from radio to internet, he is not listening to European news anymore at all.

So he’s blank and absolutely uninformed?

No. He seems to be very much informed and aware of what is going on in the world! He just doesn’t bother himself with the details anymore, which is very smart if you ask me.

Rudi and Takdir

Even though he is 71 years old already, he is aware about the influence of “the almighty internet” and regrets a bit not knowing or understanding it more. He’s not really ambitious to learn more about it though.

As he didn’t know Multiple Sclerosis as well, he seems a very remarkable person to me.

It doesn’t work pushing with full-force

I felt it earlier but only today I can see it clearly as a morning sun on the sky and realizing this almost makes me feel enlightened.

Trying to walk 5 km every day is wrong

Doing yoga for several hours a day is wrong, even meditating 5 hours every day might be wrong. Trying to adjust to such a far away and different culture within a month or even a year is wrong.

It won’t work

I have to do it constantly little by little. Maybe that could be a reason for my Multiple Sclerosis coming up too. Of course one has to build a house within a limited period, of course one has to fix the old broken-down family-car relatively soon or it will become unrepairable over time, but MS? Such a huge, widely mysterious disease with such a variety of symptoms?

Can MS be healed within some months or years?

I don’t think so or better “I am sure it can’t”. Its a constant effort with many struggles and trials and errors. Maybe constance is the key.

Constance gives us the progress

The progress we all are looking for and that we need so much. Its the baby-steps from meditating 2 minutes a day in the beginning, increasing it on some more minutes when you feel for it and more important “stay with it”. Starting yoga with 3 postures and adding more postures when I feel like it, but I have to constantly keep doing it. At some point we will start to improve.

Every Multiple Sclerosis is different

A thing I am pretty sure about is, that every MS is different to the other. Maybe not just “the big three” (PPMS, SPMS, RRMS) are existing, but dozens or even hundreds of forms exist. They seem to be as individual as the patient.

Its one Reason why Scientists canĀ“t help us

Unfortunately I think they will never be able to and this makes me really sad. Sure, the effects of this disease are similar. The myelin around the nerves is sclerotizing and this has similar effects, but the reasons behind it and the healing(!) are completely individual.

Sure, there are many things that can help!

But the key to healing lies within everybody her- or himself. Yoga, Meditation and a careful diet are important and can help, but even though they might help a majority of patients, its not guaranteed it will help you or me.

We are as individual as our disease.

Me and the squat-toilet

Well, my first times on a squat-toilet here in Sumba were quite challenging. Saying anything else would be a lie, but after some weeks now I seem to have adjusted. Its still kind of new to me, but thinking of a western standard-toilet is starting to feel strange now.

Using a Squat-Toilet is just one of my challenges here, but I am starting to enjoy it!

Something deep inside me even seems to appreciate it. Many scientists say squatting is the most healthy (because its the most natural) way to do ones business. Aside from that it is supported by the daily squats I included in my daily yoga and exercise-schedule and hey! I don’t know about your family, but at least my grandparents always had a small table in their bathroom to place it under their feet and help them to put their body in a more squatty position!

Multiple Sclerosis Patients are all highly sensitive People

Take me as an example. From time to time I realize how sensitive I really am. I am definitely hyper-sensitive. I am sensitive on interactions with other people, I am sensitive on nutrition, I am mega-sensitive on any pharmaceutical product and on and on.

Was it the even the reason for my MS?

Or did I become so sensitive because of my condition? What was there first, the chicken or the egg?

I am not the only one

Basically every other MS-patient I got to know in the years since I got diagnosed 2012 (and over the years these were quite some) had a similar attitude.