Multiple Sclerosis Patients are all highly sensitive People

Take me as an example. From time to time I realize how sensitive I really am. I am definitely hyper-sensitive. I am sensitive on interactions with other people, I am sensitive on nutrition, I am mega-sensitive on any pharmaceutical product and on and on.

Was it the even the reason for my MS?

Or did I become so sensitive because of my condition? What was there first, the chicken or the egg?

I am not the only one

Basically every other MS-patient I got to know in the years since I got diagnosed 2012 (and over the years these were quite some) had a similar attitude.

MS – I thought I was indestructible

Well, I am not. After the second night with few/bad sleep, I was cruising through the beautiful 3rd world-jungle of the island of Sumba on the backseat of a local Ojek-driver (please note, its NOT a Go-jek-driver, it seems to be the precursor) and while I slowly started to realize that I am really knee-deep in an amazingly beautiful environment, I had a hard time not falling off that bike.

Learning to walk again with MS

Its hard and definitely not easy, but I keep on learning. This morning I tried to “run” again and realized very quick (to be more specific “at the first step”) my body seems to have forgotten how running works. So I decided to give me and my body more time.

Its all baby-steps, you know?

Quite often I feel like a new born baby and before a baby can run, it needs to walk. So I keep on trying. Walking without the support of my walking-stick was a good and important decision.

MS and the power of walking

I am constantly analyzing and trying to improve. 4 days ago I started a rather convenient but new point to my longer and longer daily schedule. I started walking in the mornings. Just 15 to 20 minutes, but without my longtime companion “the walking stick“.

Several reasons for picking up walking again

I learned much about the importance of walking and realized I didn’t walk anymore since… well, since I am here. Its too easy to just jump on my scooter, taking the security of walls, pressing against trees and so on…

Recently I noticed my left leg seemed thinner than the right and thought about it

When I watched a youtube-video about the benefits of walking, I started to understand. Why my left side is loosing its balance so often, why my left side is generally weak, why the muscles on my left leg were decreasing more and more. I guess it was all because I didn’t use my left leg. To me the answer on most of this all lies in my not-walking.

15 Months

Since 15 months I am here in Bali now. I left my safe European home, left any medical support I could get in Germany, hung out strictly with local people to learn from them why Multiple Sclerosis basically doesn’t exist in Indonesia and how to fight my disease.

I am about to move to the rather remote island of Sumba in July and this are the facts helping me so far the most:

  • Daily meditation helps me better than anything else against spacicity
  • Daily yoga helps me with the pain in my back and the general physical coordination
  • physical exercises from this youtube-channel are good for basically everything

NEVER GIVE UP THE FIGHT!